Brain Soup

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On Wednesday 7 Sept 2016 about 4.30am I woke up totally confused, spoke in bubbles and tried to indicate to mum & sister in house as to my situation and I eventually opened the front door pretty naked to explain my situation. They eventually caught on that this woman is slightly mad!

My sister dressed me (back in pajamas!) and mum and sister took me straight to emergency at Panorama.

They took me to be scanned twice. My daughter Bianca & Nige arrived. I was so glad to see her.  I cannot remember much of the evening. I was informed afterwards. The scan showed a tumour in my left parietal lobe above the ear.

Dr Google describes different symptoms to mine. I up to today (9 Sep.) couldn’t remember the name of the street I live in, or the complex, or to switch on the TV. Battle with writing/typing, comprehending. I still see visions that do not exist, hear voices and have blurred vision. One gets used to everything. In the past, before I got diagnosed, I heard the most unusual music in my head which I quite enjoyed, but unfortunately it didn’t ring any bells – not enough for me to investigate why all of a sudden I’m hearing twiddles.

In hospital they put me on a high dose of cortisone on a drip and I get better every day. I’m still on cortisone for +- 3 weeks (at home) and then a retest. If it has shrunk, they will radiate the spot.

walk

The worst was being in hospital without memory and no phone or laptop, I felt so lost! Eventually on the following day I got permission from the doctor that I could slip out for an hour to go home to pack. One of the nurses accompanied me. I live 10 mins from Panorama and I was much better by then. Every morning in hospital I went walking for 10 – 20 minutes (wearing out their passage!) with nurses running after me to try to stop me but only the last day they realised I can walk.

The previous weekend I went walking for about 30 minutes fast in Boschenmeer – I thought I was doing a roundabout but then I was told “no we must retrace our steps!” I handled it well – no huffing and puffing. I always keep my mouth closed when I walk.

On 15 Sept I’m having further scans – lungs and spine. Not looking forward to drinking two large bottles Barium.  Thereafter seeing Oncologist.  Doing INR on the same day – blood test to check level.  Blood must be at a certain level to prevent blood clots. I’m not phased by these tests anymore, I just take them in my stride and relax. Bit of mind control.

mantras

 

My Mantras, every day, twice a day:
Every day in every way I’m getting better and better.
I’m in perfect healthy.
I’m the miracle, I survived cancer.

The book Mind Power by John Kehoe is really highly recommended.

I will update the blog after my next scan.

 

 

 

Oxygen

After my pulmonary embolism, I left hospital with an oxygen tank.  I was on oxygen for 24/7.  The Medical Aid only approved one huge and heavy box of oxygen. I was sooo disappointed, because how could I even start walking or exercising with that box? I immediately asked for a smaller, portable machine as well, which I had to fund myself.

The large machine is electric and can work 24/7.  The portable I received had about 3 hours’ of air. It could be charged in the car. We still had some power failures when I left hospital and I was paranoid about being caught in a power failure without oxygen.

I couldn’t keep the small one and return the large one either, because that would not have gotten me through the night.

The worst was the embarrassment, I felt I didn’t want to leave the house like that!  I wanted to wear a burka!

The most inspirational story I followed at the time was that of the young, beautiful and talented Jenna Lowe.  (Get me to 21)  Here was this young woman, setting an example for us all with her courage to live life to the full with her oxygen mask.  (Unfortunately she passed away at about the time I got diagnosed.)

So once I emerged from my shell I got on with my life and ignored the stares.  I eventually started going off the machine for short periods. I found that I didn’t fall over.  I was wondering if I’m going to be stuck to a machine forever.  I was unsure of the way forward. I heard of people getting addicted to oxygen – the doctor said “not true”.  It probably ends up being a psychological dependence but I didn’t want to end up that way.  I started to take myself off the oxygen for longer periods during the day.  I felt none the worse around the house.  Bath/shower time was an exhausting exercise that would leave me quite out of breath.  I think round about November 2015 I weaned myself off completely during the day but still carried the portable oxygen tank around with me in the car “just in case”.

I realised it was becoming too expensive to hang onto the portable machine for “just in case” and finally returned it, after I’d walked my normal 10 minute walk together with the representative from Oxygen & General with the oxygen monitor on my finger.  My oxygen level remained acceptable but for safety sake I bought my own oxygen monitor for future use.  It is a small device that clips onto the finger to measure vital stats and oxygen level.

At the moment I only use the big machine for sleeping at night but I have stayed out overnight and slept fine without it too.