I went to see the oncologist today and was surprised to hear “your radiation starts now” whoopee – miscommunication. I was hauled off to the radiation room. I will receive 5 radiation sessions, one a day, for a week until Monday 24th. Radiation is no big deal, it’s not painful at all, best to just relax and get in an extra nap while you’re there. (I have no idea what they do with people suffering from claustrophobia.) They did some X-rays first to make sure the scan is 100% in the correct position and the whole process took about 30 minutes all in all. I will be scanned again after 2-3 months to see what the effect has been from the radiation.
I’m so glad that I can start weaning off the cortisone from Monday 24th but it will be a
long process over 5 weeks at which point I need to contact the doctor to report on my progress. If I’m okay there will be a further reduction period. Making progress. I’m so bloated from water retention, that’s the worst side effect – I have a double chin, my feet and fingers hurt… long term cortisone is not easy.
At this point the tumour is still there, it has not reduced. What happened originally was that the tumour was ‘leaching’, known as a ‘brain oedema’, and the cortisone has helped to dry it up which is why I’ve been feeling better. When I heard that the tumour is “as big as an eye” – I said I would have preferred a pea! I never asked what part of the eye….
I may have patchy hair on the left hand side where I was radiated. Disappointing as my hair was coming along nicely for summer but a small thing, hardly worth complaining in the bigger scheme of things.